My daughter will no longer need to live in fear of being denied health care based on a pre-existing condition from the start of life on top of having given up 2 years of her childhood to cancer treatment. Tears of joy!
Congress passed the Creating Hope Act. The last step is President Obama’s signature!
This is the FIRST first time Congress has passed legislation to address the dire need for new drugs developed expressly for children with cancer and other life threatening diseases.
Second, here are three good reasons to be thankful for today’s Supreme Court ruling on the Affordable Care Act:
- The Act prohibits insurance companies from denying coverage based on pre-existing conditions. Previously, many young adult survivors trying to find coverage were told they were “uninsurable” as a result of their cancer. Of the nation’s 350,000 childhood cancer survivors, two-thirds face severe or life-threatening late effects, which makes insurance coverage an absolute necessity for this population.
- The Act mandates that all children, including childhood cancer survivors, be allowed to stay on their parents’ health care plan up to age 26. Before passage of the legislation, many young adult cancer survivors found themselves in an insurance gap – dropped from their parents’ plan and unable to purchase their own coverage.
- The Act prohibits insurance companies from imposing lifetime caps on coverage. Previously, childhood cancer survivors could find that treatment for late effects, such as a second cancer or other health complication, would “max out” their insurance coverage, forcing them into enormous medical debts.